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SNUPA | ALBINISM AWARENESS DAY
Al Compton | Humanitarian Film & Photography
Albinism in humans is a congenital disorder characterized by the complete or partial absence of pigment in the skin, hair and eyes. Albinism is associated with a number of vision defects, such as photophobia, nystagmus, and amblyopia. Lack of skin pigmentation makes for more susceptibility to sunburn and skin cancers.
People with albinism face multiple forms of discrimination worldwide. Albinism is still profoundly misunderstood, socially and medically. The physical appearance of persons with albinism is often the object of erroneous beliefs and myths influenced by superstition, which foster their marginalization and social exclusion. This leads to various forms of stigma and discrimination.
Al Compton | Humanitarian Film & Photography
In some communities, erroneous beliefs and myths, heavily influenced by superstition, put the security and lives of persons with albinism at constant risk. These beliefs and myths are centuries old and are present in cultural attitudes and practices around the world.
Al Compton | Humanitarian Film & Photography
On 18 December 2014, the General Assembly adopted a resolution proclaiming, with effect from 2015, 13 June as International Albinism Awareness Day.
Al Compton | Humanitarian Film & Photography
I spent an incredible week with SNUPA - Source of the Nile Union of Persons with Albinism. We traveled from village to village with the SNUPA team visiting persons living with albinism in their homes, communities, and places of business. SNUPA provides support in numerous ways but mostly the goal is to help their clients live a healthy life with their rights protected and with the stigma of albinism lifted from their shoulders.
Al Compton | Humanitarian Film & Photography
Al Compton | Humanitarian Film & Photography

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